Another way is to find a "web ring" that covers the disease or 
related diseases (that people with your group's disease might look at 
for help). For example, my epilepsy support list is part of three web 
rings:

Epilepsy Circle of Support 
http://l.webring.com/hub?ring=epilepsyring

Epilepsy Web Ring:
http://x.webring.com/hub?ring=ewr1

KidPower-- Cerebral Palsy and Family Support 
http://f.webring.com/hub?ring=kidpower

Anyone who finds any of the web sites in the ring can easily find the 
other sites in the ring. 

-- 
Francoise Becker

There is only one LISTSERV(R) -- the product that launched the 
email list communication industry in 1986. To discover the 
story behind LISTSERV, visit:
http://www.lsoft.com/corporate/20anniversary.asp