You might check with [log in to unmask] Postmaster will direct you to the right person. They host many, many public service type of lists. THey are hosting my brand new list, for Non-traditional students. Let me know if you need the persons name. Jeff On Wed, 29 Jan 1997, Agnes L Moore wrote: > Would there be a sponsor for a list for people who have Cystic Fibrosis > and/or who are related in some way to someone who has Cystic Fibrosis? A > list that would be open to patients, parents, siblings, significant > others, caretakers, caregivers, researchers -- whoever has an interest > in Cystic Fibrosis. > > Cystic Fibrosis is a disease which involves the lungs and/or digestive > system and has been publicized to have a life expectancy of age 29 on > average, though there are many exceptions to this rule. The disease is > often fatal in childhood and many sufferers await transplantation of > lungs. It is a complex disease with many ramifications and is one which > often means that a sufferer may be socially isolated and/or often > hospitalized. > > For those who deal with this chronic (fatal) illness on a daily basis > the interaction with others who face similar challenges can be most > therapeutic -- sharing ones experience strength and hope -- encouraging > others in the day to day challenges, commiserating and celebrating > life's trials and successess. > > We would like a free flowing e-mail forum with the only hard and fast > rule being "No flames" -- no insults, no put-downs. > > This would be more of a support network than one with exchanges of > medical information, research, facts etc though the latter would not be > discouraged at all. There is a group which is geared more toward the > medical implications than toward friendly support -- an important > function but we are seeking a more casual, less academic platform. > > Thank you for your consideration. > > Because I do not follow the discussion groups, would you please respond > to my private e-mail: > > Agnes L. Moore@[log in to unmask] > or > Agnes L. [log in to unmask]@Compuserve.com >