Would there be a sponsor for a list for people who have Cystic Fibrosis
and/or who are related in some way to someone who has Cystic Fibrosis? A
list that would be open to patients, parents, siblings, significant
others, caretakers, caregivers, researchers -- whoever has an interest
in Cystic Fibrosis.

Cystic Fibrosis is a disease which involves the lungs and/or digestive
system and has been publicized to have a life expectancy of age 29 on
average, though there are many exceptions to this rule.  The disease is
often fatal in childhood and many sufferers await transplantation of
lungs. It is a complex disease with many ramifications and is one which
often means that a sufferer may be socially isolated and/or often
hospitalized.

For those who deal with this chronic (fatal)  illness on a daily basis
the interaction with others who face similar challenges can be most
therapeutic -- sharing ones experience strength and hope -- encouraging
others in the day to day challenges, commiserating and celebrating
life's trials and successess.

We would like a free flowing e-mail forum with the only hard and fast
rule being "No flames" -- no insults, no put-downs.

This would be more of a support network than one with exchanges of
medical information, research, facts etc though the latter would not be
discouraged at all.  There is a group which is geared more toward the
medical implications than toward friendly support -- an important
function but we are seeking a more casual, less academic platform.

Thank you for your consideration.

Because I do not follow the discussion groups, would you please respond
to my private e-mail:

Agnes L. Moore@[log in to unmask]
or
Agnes L. [log in to unmask]@Compuserve.com