Hello everyone,

I am a co-owner/founder of a list of folks (approx. 225 from around the 
world) with an incurable autoimmune disease called Myasthenia Gravis.  It 
comes under the umbrella of the Muscular Dystrophy Association.  It can be 
very debilitating.  A great many of our members cannot work and are often 
limited in the care they can give themselves.  Even a great many doctors 
haven't "heard" of us; ER personnel are stymied when a myasthenic crisis 
arrives, unable to breathe, swallow, sit up etc.  This disease is considered 
rare and is listed in NORD's database (National Organization of Rare 
Diseases.)  There is also a foundation, MGFA (Myasthenia Gravis Foundation of 
America.)  We are in essence, some of Jerry's kids.

Our list is 3.5 years old.  Last month, we lost our sponsor who himself, is a 
Myasthenic.  Due to health reasons etc., he felt he could no longer continue 
in this capacity for us.  So, we are looking for a new host site.

Do any of you have ideas for us to peruse?  We average 15+ email per day and 
really slow down on the weekends/holidays.  

There is nothing like "like others" when you are in a life situation like 
ours.

Thank you for your time and help,
Linda Newell
Myasthenic Meeting Place

PS Our new website should be up and running in about two weeks.  We lost that 
as well.  It will be www.myasthenicmeetingplace.org.  Meanwhile, visit 

 <A HREF="http://www.mgscotland.org.uk/index.htm">Myasthenia Gravis -  Scotland</A> 

This site is maintained by Brian Houston.  He is currently building the new 
site for our revamped group.