You might check with  [log in to unmask]  Postmaster will
direct you to the right person.  They host many, many public service type
of lists.  THey are hosting my brand new list, for Non-traditional students.

Let me know if you need the persons name.

Jeff

On Wed, 29 Jan 1997, Agnes L Moore wrote:

> Would there be a sponsor for a list for people who have Cystic Fibrosis
> and/or who are related in some way to someone who has Cystic Fibrosis? A
> list that would be open to patients, parents, siblings, significant
> others, caretakers, caregivers, researchers -- whoever has an interest
> in Cystic Fibrosis.
>
> Cystic Fibrosis is a disease which involves the lungs and/or digestive
> system and has been publicized to have a life expectancy of age 29 on
> average, though there are many exceptions to this rule.  The disease is
> often fatal in childhood and many sufferers await transplantation of
> lungs. It is a complex disease with many ramifications and is one which
> often means that a sufferer may be socially isolated and/or often
> hospitalized.
>
> For those who deal with this chronic (fatal)  illness on a daily basis
> the interaction with others who face similar challenges can be most
> therapeutic -- sharing ones experience strength and hope -- encouraging
> others in the day to day challenges, commiserating and celebrating
> life's trials and successess.
>
> We would like a free flowing e-mail forum with the only hard and fast
> rule being "No flames" -- no insults, no put-downs.
>
> This would be more of a support network than one with exchanges of
> medical information, research, facts etc though the latter would not be
> discouraged at all.  There is a group which is geared more toward the
> medical implications than toward friendly support -- an important
> function but we are seeking a more casual, less academic platform.
>
> Thank you for your consideration.
>
> Because I do not follow the discussion groups, would you please respond
> to my private e-mail:
>
> Agnes L. Moore@[log in to unmask]
> or
> Agnes L. [log in to unmask]@Compuserve.com
>